Bulletin Board

There are many lots of events and programs for those who are experiencing or have experienced childhood cancer hosted by external foundations and partners. Check out these events, programs, conferences and gatherings.

 

Adaptive Gymnastics

This exciting 45-minute program is designed to introduce children with special needs to the sport of artistic gymnastics. Our preschool programs are designed to lay a strong foundation in basic gymnastics which is beneficial for any future sports children may participate in.


Canadian Association For Disabled Skiing

The main objective of this local chapter of CADS is to promote adaptive skiing and snowboarding by teaching people with disabilities how to ski or snowboard using adaptive skills and equipment tailored to their needs.

  • Program of eight two-hour lessons which typically run in January and February on Friday evenings at Canada Olympic Park. Click here for the current calendar.

CAPA Children’s Adapted Physical Activity Program

The CAPA program pairs children who have special needs ages 4 to 12 one-on-one with volunteers with the aim of developing the physical, social, and cognitive skills of the participants in a fun and interactive setting.

  • Saturday mornings at Mount Royal University from 10:00 am to 12:00 pm. The first hour is in the gym and the second hour in the pool.

Dubasov Dance and Wellness

Dubasov Dance and Wellness Inc. offers group and private dance and yoga classes for children, youth and adults with special needs. This unque studio is enhancing the quality of a one’s life by providing an environment where movement can bring forth a world of expression, strength and joy. Click here for program descriptions.

Jamie's Preschool

Jamie's Preschool provides a rich program of play, learning and support for children facing cancer, blood disorders, organ transplants and other critical illnesses. Founded in 1986 by parents of Calgary cancer patients, Jamie’s is one of North America's only early childhood education programs that serves immune-compromised children. Register and learn more here.

  • Tuesday, Wednesday, Thursday from 12:15 to 2:45 pm

Teen Group - Sage Centre Child & Family Grief Services

Is someone close to you living with a life-threatening illness? Do you want to connect with other teens who understand, feel heard and share your experience and explore what helps during grief? Register by contacting Rebca or call 403 263 4525.

  • Tuesdays, February 20th to March 20th, 6:30 to 8:00 pm.

Yoga Thrive for Youth

Yoga Thrive for Youth (YTY) is a fun, beneficial, and safe community program for pediatric cancer patients, survivors, and their siblings. YTY is excited to offer a 12-week yoga program that provides participants with individualized attention in a small group setting. Classes aim to improve participants’ quality of life by increasing physical fitness, cultivating greater self-esteem, and promoting creativity and relaxation. YTY classes also provide participants with a nurturing space for healing and a vibrant environment for building new friendships.


Articles of Interest

Read research papers compiled on the topic of childhood cancer.

Canadian Partnership Against Cancer, "Adolescents & Young Adults with Cancer."

Kelser, S. et al., "Brain network connectivity and executive function in long-term survivors of childhood acute lymphoblastic leukemia."

Laing, C. et al., ""Stories Take Your Role Away From You": Understanding the Impact on Health Care Professionals of Viewing Digital Stories of Pediatric and Adolescent/Young Adult Oncology Patients." 

Laing, C. et al., "Stories That Heal: Understanding the Effects of Creating Digital Stories With Pediatric and Adolescent/Young Adult Oncology Patients." 

Laing, C. and N. Moules, ""It’s not Just Camp!”: Understanding the Meaning of Children’s Cancer Camps for Children and Families." 

Laing, C. and N. Moules, "Social Return on Investment: A New Approach to Understanding and Advocating for Value in Healthcare."

Moules, N. et al., ""A Tribe Apart”: Sexuality and Cancer in Adolescence."

Moules, N. et al., "Changing the Shape of Sickle Cell Disease Treatment: A Hermeneutic Study of a Case that Changed a Family and a Medical Practice."

Moules, N. “Examining the Effects of Childhood Cancer on the Parental Subsystem.” Part 1

Moules, N. “Examining the Effects of Childhood Cancer on the Parental Subsystem.” Part 2

Moules, N. “Examining the Effects of Childhood Cancer on the Parental Subsystem.” Part 3 

Moules, N. et al., “Grandparents' Experiences of Childhood Cancer." Part 1

Moules, N. et al., “Grandparents' Experiences of Childhood Cancer." Part 2

Scheinemann, K. "Grandparents: A hardly recognized part of the childhood cancer family."

Wakefield, C.E., et al. "Grandparents of children with cancer: Quality of life, medication and hospitalizations."


Additional Resources

These other organizations and projects are wonderful resources for families.

Ac2orn: Advocacy for Canadian Childhood Oncology Research Network

Ac2orn is committed to advocating for Canadian researchers and clinicians as they implement the dream of curing pediatric cancer through translational research and effective treatments.

Accessible YYC

An open source Google Map where customers and owners can identify local Calgary businesses accommodating to those with accessibility concerns.

Alberta Cancer Research Institute

At the Southern Alberta Cancer Research Institute, the mission is to create a community for innovative cancer research and training that is dedicated to achieving a cancer-free future through the application of precision medicine, guided by cutting-edge research.

Alberta Children’s Hospital

The Alberta Children’s Hospital is used by patients from birth to age 18 from southern Alberta, southeastern British Columbia and southwestern Saskatchewan as multi-disciplinary teams work together to promote healing through family-centred care.

Alberta Family Wellness Initiative

The Alberta Family Wellness Initiative (AFWI) mobilizes knowledge about early brain development and its connection to lifelong physical and mental health. They bring together stakeholders from many callings to collaborate on health solutions that will directly impact families and individuals.

Alberta SPOR SUPPORT Unit

The Alberta SPOR SUPPORT Unit is dedicated to the integration of research into care, so that the right patient receives the right care at the right time. They foster evidence-informed health care by bringing innovative diagnostic and therapeutic approaches to the point of care, to ensure greater quality, accountability, and accessibility of care. Learn more about Patient-Oriented Research here.

Art Therapy and Cancer

How art can help those with cancer.

C17 Council

The C17 Council is an organization composed of the institutionally appointed heads of the sixteen pediatric hematology, oncology, and stem cell transplant programs across Canada. We represent the interests of children and adolescents with cancer and blood disorders and act as an authoritative 

Canadian Cancer Research Alliance

Canadian Cancer Research Alliance is an alliance of organizations that collectively fund most of the cancer research conducted in Canada – research that will lead to better ways to prevent, diagnose, and treat cancer and improve survivor outcomes.

Canadian Cancer Society

The Canadian Cancer Society is a national, community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer.

Cancer Nutrition Tips and Cancer-Fighting Foods

By making smart food choices, you can protect your health, feel better, and boost your ability fight off cancer and other diseases.

Cancer Knowledge Network

Cancer Knowledge Network (CKN) is North America’s most widely read cancer education resource.

CAPOC: Canadian Association of Pediatric Oncology Camps

CAPOC/ACCPO provides camps for kids with cancer with a resourceful community and invaluable networking opportunities. At CAPOC/ACCPO, our goal is to share cancer-camping best practices with the goal of ensuring that every child affected by childhood cancer in Canada has the opportunity to participate in the safest camp possible.

Care Pages

CarePages websites are free patient blogs that connect friends and family during a health challenge.

Childcan, The Childhood Cancer Research Association

Childcan raises funds to provide responsive and compassionate support services to families facing the journey through childhood cancer – from diagnosis, treatment, recovery, or bereavement. 

Childhood Cancer Canada

Childhood Cancer Canada (CCC) is the country's leading Foundation dedicated entirely to the fight against childhood cancer.

Childhood Cancer Guides

Childhood Cancer Guides is a 501(c)(3)nonprofit that publishes award-winning books for families of kids with cancer and survivors of childhood cancer. Our books are a mix of accurate medical information that is reviewed by renowned experts in pediatric oncology and true stories—practical, poignant, moving, funny—from hundreds of children with cancer, their siblings, and their parents. Our guides empower families with knowledge, practical suggestions, emotional support, and helpful resources.

Childhood Cancer International

Childhood Cancer International (CCI; formerly International Confederation of Childhood Cancer Parent Organizations) was founded in 1994, as an umbrella organization of childhood cancer grassroots and national parent organizations. Today, CCI is the largest patient support organization for childhood cancer. It is a global, parent-driven non-profit that represents 181 parent organizations, childhood cancer survivor associations, childhood cancer support groups, and cancer societies,  in 90 countries, across 5 continents.

Children's Cancer Web
This website is one of the most comprehensive resources for cancer links anywhere. One-stop shopping for everyone with information about childhood cancer from the National Institutes of Health.
Children's Oncology Camping Association International

COCA is an international assembly of people providing camping programs for children with cancer. Many of the member camps serve a broad range of special needs populations, but all members share the common thread of working with pediatric oncology patients.

Children's Oncology Group

The Children’s Oncology Group provides important information for children and their families from the time of diagnosis, through treatment and following cure.

Candlelighters Childhood Cancer Support Programs

To enrich the lives of children and their families coping with childhood cancer; and to promote awareness and understanding of the impact of childhood cancer on children and their families.

CLIC Sargent
This UK-based foundation is an excellent resource for cancer information and has a great online community for families facing childhood cancer.
Coast to Coast Against Cancer

Coast to Coast's vision is a world Beyond Kids Cancer. As Canada’s only national charity devoted to fighting childhood cancer, Coast to Coast Against Cancer ensures 100% of receipted donations are invested in improving the survival rate and quality of life of children and their families impacted by cancer.

Cord Blood Banking - Canadian Blood Services

Blood in the umbilical cord and placenta is rich with blood-forming stem cells that can help save the lives of patients with diseases and disorders such as leukemia, lymphoma and aplastic anemia. With your consent, Canadian Blood Services can collect cord blood when you deliver your baby for Canadian Blood Services' Cord Blood Bank—to be used by anyone who needs stem cell treatment.

Cord Blood Banking - How It Works

Cord blood can only be collected at birth, that’s why it’s important to do your research well before your baby’s due date.  Watch this short video to learn exactly how cord blood is collected, processed and stored.

Cord Blood Banking - Insception Lifebank

With over 20 years of cord blood banking experience, Insception Lifebank has processed and stored more than 65,000 cord blood units, the largest number of all Canadian cord blood banks.

Cure4kids
Cure4Kids is a Web site dedicated to improving health care for children with cancer and other catastrophic diseases in countries around the globe. Cure4Kids provides continuing medical education focusing on pediatrics and oncology, and global communication tools to health care professionals and scientists worldwide. Explore this free resource and start collaborating worldwide.
CureFest Canada

CureFest’s mission is to make childhood cancer research a national priority by uniting the childhood cancer community, the general public, the medical community and our elected leaders as one voice against childhood cancer. CureFest is a 'trade show like' approach where various organizations/foundations related to childhood cancer get together in a public place.

Curesearch
Although this website is American, it contains a wealth of information for Canadians with up-to-date information on childhood cancer for patients, their families, their physicians and health care advisors.
Current Oncology
Current Oncology is a Canadian-based journal, which is distributed internationally for health professionals, patients, caregivers and families. An excellent online resource for anyone who wants to understand cancer, it also features an excellent online support network for patients and loved ones.
The Ewings Cancer Foundation of Canada

It is the aspiration of the Ewings Cancer Foundation of Canada to provide hope for those that are and those that will be affected by Ewing sarcoma. We are committed to funding the medical research to find new and better treatments and ultimately, the cure.

Feel Better Friends

Feel Better Friends are handmade dolls stuffed with love and well wishes, crafted by volunteers and donated to children battling cancer and other illnesses.

First Survivor: The Impossible Childhood Cancer Breakthrough

This is a real life thriller about a family’s battle to save their son from a “zero chance of survival” diagnosis. With the world’s best doctors and the advocacy of his parents, Louis Unger would fight the battle for his young life. His grit and incredible attitude led to a breakthrough that would change how cancer is treated today. This is not a medical journal or a how-to guide. It is a true page-turner that gives you a front row seat to a miraculous story of courage, inspiration and determination. All proceeds from this book will go to the Carrot Seed Foundation where they will be used to fund Neuroblastoma clinical trials and support the children and families who are stricken by this disease.

Gilda’s Club Toronto

If you or someone you know has cancer, this site will introduce you to a program of social and emotional support that benefits anyone living with cancer. Men, women and children diagnosed with cancer and their family and friends are always welcome here.

Helping Families Handle Cancer

To provide financial support for families who are struggling to make ends meet because their child is battling cancer.

Hope Portal

The Hope Portal is a free, continually-updated directory of curated childhood cancer family support organizations in Canada and The United States.

Icing Smiles
This is a nonprofit organization that provides custom celebration cakes and other treats to families impacted by the critical illness of a child.
Imaginary Friends Society
Here you’ll find kid-friendly videos covering a wide range of cancer-related topics – everything from defining cancer itself to chemotherapy and MRIs. Please share them with anyone, young or old, who might benefit from seeing them.
International Confederation of Childhood Cancer Parent Organization
This is the website of this International organization. It is a worldwide network of organizations of parents of children with cancer.
Jamie's Preschool

Jamie's Preschool provides a rich program of play, learning and support for children facing cancer, blood disorders, organ transplants and other critical illnesses.

Journey Through Loss of a Young Child Society

From the organizers: "We are a group of grieving mothers in Calgary who meet to share and heal our losses. We hope to be a beacon for those who are grieving the loss of their young child. Coffee shop meetings happen once a month."

KidsGrief.ca

KidsGrief.ca is a free online resource that helps parents support their children when someone in their life is dying or has died. It equips parents with the words and confidence needed to help children grieve life’s losses in healthy ways.

Kids With Cancer Society of Alberta
Kids With Cancer is an Edmonton-based charity that provides programs and services to children with a history of cancer and their families.
Leucan

For more than 35 years, Leucan has been committed to helping cancer-stricken children and their families. In addition to its support to clinical research, the Association provides specific and personalized services to its families: emotional assistance and support, financial assistance, referral services, massage therapy, hosting and support in hospital's playrooms, sociorecreational activities, an awareness program in school, end-of-life and bereavement follow-up, as well as theLeucan Information Centre.

Leukemia & Lymphoma Society

The Leukemia & Lymphoma Society provides free information, education and support services for those who are impacted by blood cancer. For personalized disease, treatment or support information, contact your local chapter.

National Cancer Institute

Information to help caregivers cope while caring for a loved one with cancer, as well as help someone with cancer talk about and cope with the illness.

Neuroblastoma Canada

Neuroblastoma Canada is a national community-based organization dedicated to uniting Canadian neuroblastoma families.

Ontario Parents Advocating for Children with Cancer (OPACC)

OPACC was established in 1995 and is comprised of representatives from parent groups, parent contacts, and other family members from across the Province of Ontario. Our members are parents, guardians, survivors, or close relatives of a child/teen diagnosed with childhood cancer. 

Pediatric Oncology Experimental Therapeutics Investigators Consortim

POETIC is comprised of a network of ten leading academic medical centers. Their members serve a geographically and ethnically diverse patient population, with an emphasis on comprehensive cancer care and research.

Pediatric Oncology Group of Ontario

Pediatric Oncology specialists in Ontario have collaborated closely, since 1983, to deliver the right care at the right time and in the right place for children with cancer and their families.

Pediatric Oncology Research Manual

The Pediatric Oncology Exercise Manual (POEM) aims to inspire and promote an active lifestyle for children with cancer in order to help them counteract cancer treatment side effects and achieve a better quality of life. Check out these infographics regarding exercise for children affected by cancer.

Pediatric Oncology Group of Ontario (POGO)

POGO champions childhood cancer care through collaborations in healthcare innovation, survivor care, family assistance, population data, policy development, research and education. 

Redkite: Grandparent study

When a grandchild is diagnosed with cancer, many grandparents feel like their world has been turned upside-down. Grandparents not only worry about their grandchild with cancer, but for their son or daughter (and/or their partner) and their other grandchildren. This booklet attempts to answer some of the many questions which grandparents of children with cancer told us they would have liked answered.

Sleep and Cancer - Tuck Sleep Foundation

An in-depth guide to the latest research on sleep and cancer from the Tuck Sleep Foundation in The United States. Includes the sleep-related side effects of common cancer treatments and ways to get a better night’s sleep while dealing with daytime fatigue, insomnia, restless leg syndrome, and other symptoms that patients with cancer might experience.

Start the Talk

This resource is a guide for educators, healthcare professionals, patients and those close to them to support children and teens when a family member has cancer.

Team Finn

Team Finn is a volunteer based organization dedicated to raising childhood cancer awareness and to raising funds for cutting edge pediatric cancer research. Team Finn is named after and celebrates the life of Finn Sullivan.

Virtual Hospice

The Canadian Virtual Hospice provides support and personalized information about palliative and end-of-life care to patients, family members, health care providers, researchers and educators.

World Health Organization

The primary role of WHO to direct and coordinate international health within the United Nations’ system.

These are the main areas of work:

Health systems
Promoting health through the life-course
Noncommunicable diseases
Communicable diseases
Corporate services
Preparedness, surveillance and response

Infographics

Check out these infographics relating to childhood cancer. Please click to view.

Myths vs. Facts: Childhood Cancer Survivors

 

Physical Activity and Childhood Cancer