“I ask myself sometimes in difficult moments: ‘What would Edyn do? How would Edyn handle this?’ I believe this is what Edyn would do. She would reach out and help others. To remember Edyn is to keep her spirit alive and this head shave in her name for other kids with cancer is the perfect way to do it.”
I will never forget that moment, coming out of the MRI suite when the technician directed me toward a room where Shelly was sitting, waiting for me to return. Shelly had already been devastated by the images and what the radiologist had said. The images revealed a massive brain tumour, which we later confirmed as a group 3 metastatic medulloblastoma – one of the worst and most aggressive forms of childhood brain cancer.
“It has been amazing to be recognized nationally for this research but more important, is knowing that the research may actually have potential in the real world”–Colette Benko.
We learned to live in the moment in a way that only something like this can teach. Joy could be found in heartache and hope was hidden in the darkness. The support around us bolstered us and helped us crawl through the unknown life-territory we had been forced to travel.
“I’ve volunteered for a lot of organizations in my life and Kids Cancer Care is by far and wide the best organization I have ever volunteered for. That’s why my partner Gary and I became monthly donors; we know what Kids Cancer Care does for families.”
On September 15, 2016, the Pediatric Oncology Experimental Therapeutics Investigators Consortium (POETIC) and CorMedix Inc., announced a powerful new partnership in the fight against childhood cancer. With the new partnership agreement, POETIC and CorMedix will work together to develop a promising drug called CRMD-005 as a potential treatment for rare children’s tumours, including neuroblastoma and osteosarcoma.